The Exceptional Parent back issues from June 2003:
Last passages. (editor's desk).(Editorial)
Jun 01, 2003; ... "Each one of us is born for a specific reason and purpose and each one of us will die when he or she has accomplished whatever was to be accomplished. The in-between depends on our own willingness to make the best of every day, or every moment, of every opportunity. The choice is always ...
Search & respond.(letters and e-mails between parents of exceptional children)
Jun 01, 2003; ... S Outliving Expectations I would like to hear from other parents with children having progressive, degenerative diseases such as muscular dystrophy who have outlived their early prognosis of a shortened life and are now adults. How do you deal with the special issues involved ...
New Stanford Center offers hope for Down syndrome therapies. (what's happening).
Jun 01, 2003 ... Stanford University Medical Center has started a multidisciplinary center for Down syndrome research. The center will focus on understanding the biological basis of Down syndrome and develop therapies to reverse or eliminate difficulties with cognition, speech, sleep and late-life decline ...
Conference. (what's happening).
Jun 01, 2003 ... The third international conference on Costello syndrome will be held from July 24-27, 2003 at the duPont Hospital in Wilmington, DE. <Pre> The schedule is as follows: July 24 (Thurs) For patients, parents, and family July 25 Medical and ...
Safe summertime swimwear. (what's happening).
Jun 01, 2003 ... My Pool Pal manufactures floatation swimwear for children with special needs. The suit is constructed with sewn-in, closed-cell foam inserts, giving the users more stability in the water and freedom of movement. The suits are available will full-length ...
HARC to open new integrated sensory-rehabilitation center for people with multiple disabilities. (what's happening).(Greater Hartford Association of Retarded Citizens)(Brief Article)
Jun 01, 2003 ... The Greater Hartford Association of Retarded Citizens (HARC) recently announced the opening of its new, state-of-the-art rehabilitation program, The Louise and Arde Bulova Center, for adults with severe multiple, physical and developmental disabilities. The Louise and Arde ...
Hand therapy. (what's happening).
Jun 01, 2003 ... MedDev's Hand Helper[R] has created a new Order Assist[TM] program to help therapists and nursing care professionals. The brochure includes exercise and device information to help individuals choose the appropriate Hand ...
A new way to order much needed products. (what's happening).(introducing MyMedMart.com)
Jun 01, 2003 ... MyMedMart.com was created to solve the problem that parents encounter when attempting to find the necessary medical supplies and equipment for their special needs children. Maureen Seamonds, whose son, Nick, has cerebral palsy, was tired of driving to different towns searching ...
Meet my brother.(a sister writes about her brother, who has autism)
Jun 01, 2003; ... My name is Sarah Peralta. I am nine years old and go to Maria Hastings Elementary School in Lexington, MA. I would like you to meet my brother, Evan, who is eight. He goes to a special school and three afternoons a week a home trainer (a special teacher) comes to our house to work with ...
For further reading ...(books for/about siblings of children with special needs)
Jun 01, 2003; ... Siblings of children with special needs often have their own special needs and thoughts that may get overlooked or misunderstood. The following titles will not only help siblings understand their brother's or sister's disabilities, but can also help them understand and accept their own ...
House passes IDEA reauthorization bill: despite opposition from virtually every national parent organization and many teacher groups, the U.S. House of Representatives passed H.R. 1350 in April to reauthorize the Individuals with Disabilities Education Act (IDEA). (IDEA Notebook).
Jun 01, 2003; ... IDEA is considered a civil rights act for children with disabilities because it guarantees a free, appropriate public education. Originally passed in 1975, it affects 6.5 million American children with disabilities. Before the IDEA, many children with disabilities were shut away at home or ...
Ray Kurzweil: Q&A on technology & education. (Technology).
Jun 01, 2003; ... Ray Kurzweil, inventor, entrepreneur, author and futurist, was the principal inventor of the first omni-font optical character recognition (OCR), the first print-to-speech reading machine for the blind, the first text-to-speech synthesizer and the first commercially marketed large ...
What is assistive technology? (Tech Scapes).(introduction to new monthly column)(Column)
Jun 01, 2003; ... Tech Scapes is a new column that will be featured on a monthly basis in EP Magazine. Due to ever increasing impact that technology holds for persons with disabilities and their families, EP will now provide the newest and most important information about assistive technology ...
We're here too! Supporting "sibs" of children with special needs.(siblings)
Jun 01, 2003; ... When our third daughter, Tally, was born with spina bifida, my first two thoughts were: "Is she going to live? and "What will life be like for her two older sisters?" who were then ages five and two. Throughout the first year of Tally's life, I found a partial answer to my first question ....
Sibling's role in occupational therapy. (Cover Story).
Jun 01, 2003; ... Three little faces were peering through the living room window as therapy equipment and activities were unloaded from the trunk of my car. Two-and-a-half-year-old triplets were waiting for my weekly visit. As I walked up the path to the entryway, all three little bodies scurried away from ...
Table for all.(furniture for persons with disabilities)
Jun 01, 2003 ... The challenge was to solve the vexing problem of finding/designing a comfortable, accessible, height-adjustable and versatile table. The Center for Discovery, a private, non-profit agency located in the Catskill Mountains near Monticello, New York, that offers children and adults with ...
Play ball!(baseball)
Jun 01, 2003; ... Baseball has long been our national pastime, but for hundreds of kids with disabilities it is becoming much more than that. The Baseball Tomorrow Fund, a collaboration of Major League Baseball (MLB) and the Major League Baseball Players Association (MLBPA), has provided funds to four ...
Aplastic anemia and MDS International Foundation, Inc. (organizational spotlight).(Myelodysplastic Syndromes)
Jun 01, 2003; ... Disbelief and devastation--that's what Tony and Briget Sanfilippo felt when their five-year-old daughter, Rachel, was diagnosed with aplastic anemia, a rare and potentially fatal bone marrow failure disease. Immediately the family was thrown into a world of unfamiliar medical ...
Guardianship: making the right choices. (financial advice).
Jun 01, 2003; ... The following information is educational in nature. It is designed to provide basic information regarding guardianship. Nothing in this article is intended to be legal advice. Every situation is unique and therefore the advice of an attorney is recommended for specific situations. ...
Familiar faces.(snapshots of disabled/exceptional children)
Jun 01, 2003 ... LEWIS Lewis Oldenbuttel, 9, was diagnosed with tuberous sclerosis at eight weeks. He is non-verbal and has seizures, kidney disease and high blood pressure. This picture was taken with his sister Siobhan. Two years ago, Lewis had his second brain surgery to control grand-mal ...
Traveling for sports competition: minimize the hassles, maximize the experience, Part 2. (sports).
Jun 01, 2003; ... (see April 2003 for Part I) The National Disability Sports Alliance (NDSA) has accumulated years of experience in coordinating travel for teams of athletes with disabilities going to both domestic training camps and international competitions all over the world. Once ...
Lobbying for children with special needs.
Jun 01, 2003; ... The Census Bureau reported that in 2000 there were more than 2.6 million noninstitutionalized U.S. children (between 5-15 years of age) with one or more disabilities. Unfortunately, the use of all-inclusive "mega numbers" (the annual carnage of tens of thousands killed in automobile ...
4th Annual World Congress & Exposition On Disabilities: conference and show brochure.(Calendar)
Jun 01, 2003 ... September 18-20, 2003 Orange County Convention Center Orlando, Florida Welcome The 4th annual World Congress & Exposition on Disabilities (WCD) will continue its mission to provide something valuable for everyone in the disability community. The show floor will once ...
Obesity in children with special health care needs. Part II.
Jun 01, 2003; ... A few months ago, we featured an article on obesity and stressed its importance as a national problem. That article was written by Judith Amundson, a nationally-known nutritionist. In this article, Shirley Ekvall, another nationally-known nutritionist, has provided additional information ...
Autism Tissue Program: the gift of hope. (EP On Autism).
Jun 01, 2003; ... "We never knew what was wrong with Eric when he was alive and hope that this research will help lead to an understanding about autism." Eric, age five, had autism and died of heart failure during a seizure. The wish of his father, Jonathan Carrillo, echoes the wish of all the families who ...
POCKETcomm[TM]. (new products).(lightweight, compact, portable TTY/VCO (Voice Carry Over) device for the deaf and hard of hearing)
Jun 01, 2003 ... POCKETcomm[TM] is a lightweight, compact, portable TTY/VCO (Voice Carry Over) device for the deaf and hard of hearing. It can be used with compatible cell phones, cordless phones, emergency call boxes and pay phones. The POCKETcomm[TM] features a four-row keyboard with thirty-two keys, ...
SpringBoard. (new products).(lightweight, compact, augmentative communication aid)
Jun 01, 2003 ... The SpringBoard is a lightweight, compact, augmentative communication aid operated through direct selection, single and dual switch scanning or infrared head pointing. It features a color touch screen, text display and digitized speech. The optional key sizes and locations range from four ...
PocketViewer. (new products).(compact, lightweight, portable video magnifier)
Jun 01, 2003 ... The PocketViewer is a compact, lightweight, portable video magnifier that displays seven times magnification on a four-inch flat panel display. Tilting or lifting the PocketViewer reduces the magnification and provides a larger viewing area. The images appear in high contrast black on ...
AdaptaTray. (new products).(wheelchair tray and positioning system)
Jun 01, 2003 ... AdaptaTray is a wheelchair tray and positioning system for arms, hands, equipment and activities. It comes with a polycarbonate plastic customized tray and a multifunctional system of blocks, brackets and straps. The blocks feature padding for comfort and support when positioning limbs and ...
David! (children's page).(a sister writes about her brother, David, who has Down Syndrome)(Brief Article)
Jun 01, 2003; ... I am a nine-year named Madeline with an older brother who has Down syndrome. David is smart, funny, learns easily and has a love of reading. David loves playing house; he likes to be the one-hundred-year-old grandmother. When David was in kindergarten we got him glasses. David ...