Article: Pain, coping, and disability in adolescents and young adults with cystic fibrosis: a web-based study.(Continuing Education Series)

Purpose: The purpose of this study was to develop a web-based education program tailored to patients with cystic fibrosis (CF) who may be experiencing pain, and to investigate, via the website, the pain experiences of those patients by studying their pain reports, disability, and coping strategies.

Method: This study was a cross-sectional survey of CF patients. Recruitment efforts focused on informing patients of the website and research study. A sample of 18 participants was recruited. Three separate questionnaires were employed: a demographic questionnaire, the Pain Disability Index, and the Pain Response Inventory.

Findings: Approximately half of the ...

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