Article: Reaching for independence counseling implications for youth with Spina Bifida.(Report)

In the United States, an estimated 70,000 people live with spina bifida (Spina Bifida Association of America [SBAA], n.d.), one of the most complex congenital abnormalities compatible with long-term survival (Bowman, McLone, Grant, Tomita, & Ito, 2001). Spina bifida is a neural tube defect occurring in the 1st month of pregnancy, when the spinal column fails to close completely. Approximately 90% of children with severe spina bifida also experience hydrocephalus, resulting in the need to have a shunt implanted (SBAA, n.d.). Comorbid conditions include full or partial paralysis, bladder and bowel incontinence, learning deficits, depression, latex allergies, and a myriad of ...

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