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Article: Parent to parent support and health care.(support services for parents of children with disabilities)
- Article from:
- Pediatric Nursing
- Article date:
- May 1, 1997
- Author:
CopyrightCOPYRIGHT 1997 Jannetti Publications, Inc. This material is published under license from the publisher through the Gale Group, Farmington Hills, Michigan. All inquiries regarding rights should be directed to the Gale Group. (Hide copyright information)
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When living with a disability, families typically experience a wide range of emotions, often including a grieving reaction at the time of diagnosis (Turnbull & Turnbull, 1997) that may reappear during developmental and transitional challenges. Compounding this sadness are the frustrations of daily living, particularly the challenges related to accessing community services (Cameron, Snowdon, & Orr, 1992). The daily logistics of care may include repeated visits to specialists and resulting financial bills, demanding care giving responsibilities, juggling other family members' needs, and little opportunity for respite (Brotherson & Goldstein, 1992; Knoll, 1992).These often ...