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Article: Aspects: Ray of hope born from tragedy; Missing genetic information can leave children with up to 180 crippling defects. Mel Hunter meets two women who live in the shadow of DiGeorge syndrome.
- Article from:
- The Birmingham Post (England)
- Article date:
- July 11, 2000
- Author:
CopyrightCOPYRIGHT 2000 Birmingham Post & Mail Ltd. This material is published under license from the publisher through the Gale Group, Farmington Hills, Michigan. All inquiries regarding rights should be directed to the Gale Group. (Hide copyright information)
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Like all parents Julie and Paul Wootton have snapshots of every step of son Max's life. There is Max in his cot, Max with his big sister, Max in his proud mother's arms.
People ask his parents if they would prefer not to have a keepsake of the tubes which in the photographs visibly thread across Max's face, but for the Woottons the tubes, the drips and the operations were all a vital part of his young life.
Sadly the pictures finish when Max was four-months-old. He died in March last year without ever leaving Birmingham Children's Hospital.
Max ...